_________________________________________________________________ Autism FAQ - Initiatives _________________________________________________________________ See also section "Charities and Foundations". National Autism Hotline, (304) 523-8269, provided by the Autism Services Center, 101 Richmond Street, Huntington, WV 25702. Annual Autism Conference by Autism Society of America, July of each year. Intended for parents, researchers, psychologists, and educators. ASA fax-on-demand service for autism documents. Call 1-800-FAX-0899, 24 hours a day, 7 days a week. Have your fax number handy and you can request a list of the available documents, which includes a copy of the Autism Society of North Carolina Book Store List. The flyer reports that the service is provided, in part, by a grant from the American Speech-Language-Hearing Association. TEACCH (Treatment and Education of Autistic and Related Communication Handicapped Children) program in North Carolina. Division TEACCH Administration and Research CB# 7180, 310 Medical School Wing E The University of North Carolina at Chapel Hill Chapel Hill, NC 27599-7180 919-966-2173 FAX 919-966-4127 Email: [email protected] http://www.unc.edu/depts/teacch DEAL (Dignity through Education and Language Communication Center) Melbourne, Australia. Pioneered facilitated communications. [others?] Facilitated Communication Institute. Facilitated Communication Institute Syracuse University 370 Huntington Hall Syracuse, NY 13244-2340 (315)443-9657 FAX (315)443-2274 Email: [email protected] http://soeweb.syr.edu/thefci/ Sibling Information Network - an organization for siblings of children in special education. They publish a newsletter and coordinate pen pals. Not specifically for autism. Sibling Information Network The A.J. Pappanikou Center on Special Education & Rehabilitation 991 Main Street East Hartford, CT 06108 (203) 282-7050 Autism Research Institute (ARI) 4182 Adams Avenue San Diego, CA 921161 http://www.autism.com/ari/ Autism Directory Service; 19 Mark Vincent Drive, Poughkeepsie, NY 12603. May Institute/The May Center for Early Childhood Education - a program targeting preschool through about 1st or 2nd grade kids with autistic spectrum disorders. The teaching method is discrete-trial like Lovaas. The May Center 10 Acton St. Arlington MA 02174 1-617-648-9260 Irlen Institute for Perceptual and Learning Development 5380 Village Rd. Long Beach, CA 90808 (310) 496-2550 Fax: (310) 429-8699 The Option Institute and Fellowship. Organization in Sheffield MA, for autistic and other special-needs children formed by Barry Neil Kaufman, author of "Son-Rise". http://www.option.org/ [email protected] (specifically for Sun-Rise program: [email protected]) Special Olympics - open to participants ("athletes") with developmental disabilities including autism. National number is (202) 628-3630. Autism News Service (ANS) - an article exchange/syndication service for autism-related newsletters. Anyone who is involved in producing a newsletter, or who has an article they would like to submit, is welcome to email [email protected] (Mark Painter). National Alliance for Autism Research (NAAR) - founded in 1994 by a group of parents of autistic children who were frustrated by the absence of any organization dedicated to supporting and encouraging biomedical research into autism and related disorders. It is a non-profit organization that is governed by parents and whose sole mission is to increase the level of medical research into the causes, prevention and treatment of autism. They publish a newsletter called NAARATIVE. 66 Witherspool Street, Suite 310 Princeton, New Jersey 08542 (908) 359-9957 [email protected] http://www.naar.org CELIAC e-mail mailing list - The Celiac discussion group is an open, unmoderated discussion list for those interested in Celiac Disease, dermatitis herpetiformis, gluten intolerance, wheat allergy, and co-incident intolerances, such as casein or lactose intolerance. The discussions will include the latest scientific research (written for the lay person); information on what food is gluten free and what is not; tips on how to eat out of the house, how to cope issues, including coping with the developmental delays and behavioral changes sometimes brought on or aggravated by gluten (Autism, Asperger's, Attention Deficit, etc.); recipes and tips on how to cook; and where to find gluten free food by mail order. To subscribe, send the following command in the body of email to [email protected] on the Internet: SUB CELIAC yourfirstname yourlastname. For example: SUB CELIAC John Doe There are also online archives and files available from [email protected]. Indiana Resource Center for Autism (IRCA) - among other things they sell some videos about autism. Indiana Resource Center for Autism Indiana University Institute for Study of Developmental Disabilities 2853 East Tenth St. Bloomington, IN 47408-2601 1-812-855-6508 http://www.isdd.indiana.edu/~irca/ The HANDLE Institute - "Holistic Approach to Neuro-Developmental and Learning Efficiency". Organization dedicated to non-drug approaches to a number of neurological disorders including autism. The HANDLE Institute 1219 Westlake Avenue North Suite 203 Seattle, Washington 98109 1-206-285-5498 FAX: 1-2060285-3228 [email protected] http://www.handle.org/ ME-List - a private mailing list which provides a forum for discussion of discrete-trial-based interventions (also referred to as "behavior modification" and as "Lovaas" therapy) for autism and related disorders. To subscribe to this list, send a short note to Ruth Allen at [email protected] giving your specific reason for interest in this topic. If you have web access, check the website for more specific instructions: http://php.iupui.edu/~rallen/mlfaq.html Compuserve: 1. Autism is discussed in the ADD Forum, select GO ADD 2. For current Bulletin Board discussion: Under topics, select Autism/TS/NBDs 3. For reference articles, Under Libary select Autism/TS/NBDs 4. A Live discussion is held Wednesdays from 10PM to 11PM Eastern Time in conference room 2. America OnLine: 1. The "Equal Access Cafe"/Autism discussion group:Thursdays at 9pm EST (keyword:disAbility then choose Equal Access Cafe). These sessions are later available as text documents. 2. disABILITIES Message Center/Mental Health Issues & Concerns: Browse the folders and choose "Autism" to read posted messages and discussions from members or to ask/answer questions of others AOL members. 3. Better Health & Medical Forum (Keyword:Health)/Health Libraries has some articles on autism and plenty of information on disabilities and advocacy. 4. The "Equal Access Cafe"/Asperger's discussion group:Thursdays at 10PM EST (keyword:disAbility then choose Equal Access Cafe). 5. Asperger Folder - Go EDUCATION, Parent's Information Network, scroll to Special Education, message boards, keep scrolling until you find it --folders aren't in alphabetical order. Prodigy: I've heard ther eis a discussion on Autism at 10PM on Tuesdays. IRC: I've heard there is a discussion on Autism nightly about 10PM on #autism. There is a home page for participants at http://www.connect.net/sherman/access.html There is also a group of autistic people who chat online on the channel #autistics. There is also an IRC channel called #aba of people discussing Applied Behavioral Analysis. There is a home page for participants at http://www.geocities.com/Heartland/Plains/1648/ ASPERGER mailing list: at [email protected] Join by sending mail to [email protected] ABA-PRO mailing list: at [email protected] PAN-L mailing list (Parents and Autistics Network List) is a mutual support e-mail mailing list of autistic people and parents of autistic people. To find out how to join, send a note to Carolyn Baird at [email protected] OzAutism mailing list (Austrialia) THE HANEN EARLY LANGUAGE PROGRAM___________Helping Children Communicate 252 Bloor St W, Ste 3-390, Toronto, ON. Canada. M5S 1V5 Tel: (416) 921-1073 Fax: (416) 921-1225 E-mail: [email protected] World Wide Web: http://www.hanen.org COSAC- the New Jersey Center for Outreach and Services for the Autism Community at 1450 Parkside Avenue, Suite 22, Ewing, NJ 08638; (609) 883-8100. COSAC just published a National Directory of Programs Serving Individuals With Autism and Related Pervasive Developmental Disorders this past December. It is available for $5.00 and contains a wealth of information that may be helpful to you. e-mail: [email protected] http://members.aol.com/njautism Community Support Services - Job placement organization specializing with autism-vocational placement; director is Susan Carlton Ingram. Community Support Services 4424 Montgomery Avenue, Suite 201 Bethesda, MD 20814 301-907-8919 Autism Treatment Options, Inc. (ATO): a non-profit organization established in August, 1994 by a group of parents of autistic children who were frustrated over the lack of available options for the treatment of autism in North and South Carolina. ATO publishes the "Autism Options Guide - Resource Handbook" which lists available resources in the field of autism for use by parents or other persons as a starting point for their search for the most appropriate treatment method(s). Autism Treatment Options, Inc. 13 Mountain Lake Drive, Hendersonville, NC 28739 Autism Services Association: a resource for adults. 47 Walnut Street Wellesley Hills, MA 02181 617-237-0272 Fax 617/237-5020 e-mail: [email protected] Cure Autism Now (CAN): Organization dedicated to funding research with direct clinical implications for treatment. 5225 Wilshire Blvd., Suite 503 Los Angeles, California 90036 phone: (213) 549-0500 fax: (213) 549-0547 e-mail: [email protected] http://www.canfoundation.org/ PREACCH: a national, Christian support group for people homeschooling autistic kids. Memberships are $15/year and scholarships are available. PREACCH P.O. Box 736 Lake Hamilton FL 33851 407-453-0663 e-mail: [email protected] http://bondingplace.com/preacch/ Future Horizons (was Future Education) Publisher that specializes in books on Autism/PDD. Future Horizons 422 E. Lamar, Suite 106 Arlington, Texas 76011 1-800-489-0727 [email protected] http://www.futurehorizons-autism.com Reaching Potentials: private, non provit organization established by a small group of parents dedicated to supporting a broad spectrum of services to individuals with autism and their families. 305-370-3324 407-852-0251 http://www.gate.net/~fnd/autism/ AUTINET FORUM. An electronic mailing list aimed to be a point of unity between Autistic/Asperger's people, their parents, caregivers, assistants, friends, psychiatrists, psychologists, and researchers in the field. Run by Peter Wise ([email protected]) http://www.iol.ie/~wise/autinet/ DAP ? The DE School ? 302-454-2202 Walden ? Autism Treatment Services of Canada 404- 94 Ave SE, Calgary, Alberta, Canada T2J0E8 phone: 403-253-6961 fax: 403-253-6974 e-mail: [email protected] http://www.autism.ca/ Autism Research Unit at University of Sunderland, England Operates a computerized database of research publications into all aspects of autism. Tomatis Americas Network http://www.tomatis.com/ Delaware Autistic Program Statewide program, also developer of PECS. 142 Brennen Drive Newark, DE 19713 (302) 454-2202 [email protected] http://www.dca.net/daprog/ Free Online Advocacy for Autistic Children, funded by The Office of Advocacy for Autistic Children, a non-profit advocacy and lobbyist group. The online service is run by Mike Robinson. P.O. Box 4030 Ione, CA 95640 (209)763-5950 ext. 51 [email protected] Candida Wellness Center 1-800-644-1612 Has catalog Family Resource Services, Inc. Sells books & items on autism & developmental delay; has catalog P.O. Box 1146 231 Columbia Road 61 Magnolia, AR 71753 1-800-501-0139 (Usa) 1-501-234-9025 Fax: 1-501-234-9021 [email protected] USA Higashi - school for autistic chilren in Boston. Potential Unlimited Publishing (PUP) Non-profit publisher of books on autism. P.O. Box 218 Stratham, NY 03885-0218 http://svpal1.unh.edu/PUP Defeat Autism Now! (DAN!) Occasional autism-related conference oriented towards medical intervention into autism. The first conference was in January 1995, and I think as of 6/97 that there has been one more. They resulted in a book known as The DAN Protocol, or orignially, Clinical Assessment Options for Children with Autism and Related Disorders (see section on books below). AUTISM-PHYSIO e-mail mailing list - for sharing information and discussing various physiological/metabolic/genetic theories about autism and possible interventions based upon these theories. To subscribe, send the following command in the body of email to [email protected] on the Internet: SUB AUTISM-PHYSIO yourfirstname yourlastname. For example: SUB AUTISM-PHYSIO John Doe There are also online archives available from [email protected]. AUTISM-SUPPORT e-mail mailing list, a Christian online support group formerly know as Christian Parents of Autistic Children (CPAC). To join, send e-mail to [email protected]. The alt.support.autism unmoderated newsgroup. The Autism Network for Dietary Intervention (ANDI) Publishes The ANDI News http://www.autismndi.com/ The Doug Flutie, Jr. Foundation for Autism http://www.dougflutie.org/ The Autism Research Foundation (TARF) Dedicated to the study of the neuropathoology of autism. Suite W701, Moss-Rosene Lab 715 Albany Street Boston, MA 02118 (617)414-5286 [email protected] http://ladders.org/tarf/ Open Your Eyes, an initiative of Unlocking Autism PP.O. Box 1086 Baton Rouge, LA 70821-1086 Phone: (877) 769-6736 FEATNews Online (FEAT Daily Online Newsletter) News bulletin on Autism e-mailed twice daily, by FEAT. http://www.feat.org/FEATNews/ Collaborative Autism Project (CAP) Collaboration between several research centers on autism and gentics. http://www.autismgeneticresearch.org/ Autism Support and Advocacy Project (ASAP) 151 Portsmouth Ave Stratham, NH Phone: 603-778-6008 [email protected] http://www.pup-asap.com/asap.htm _________________________________________________________________ -- 山风吹乱了窗纸上的松痕, 吹不乱我心头的人影.